Tell Us What You’re Doing
Are you hosting an event this year for Rare Disease Day? Submit it for publication on this website here in order to reach more people and show the impact of everyone’s efforts across the U.S.! Events submitted must be in the United States and can include, but are not limited to: a company’s lunch-and-learn for its employees, a patient organization’s community awareness event, a research symposium, a concert, a school program, a media event, Advocacy Event, and more. Rare Disease Day is a grassroots effort and we want to hear how you’re participating. This is a day for every member of the rare disease community — patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.