Days To Go




Tell Us What You’re Doing

Are you hosting an event this year for Rare Disease Day? Submit it for publication on this website here in order to reach more people and show the impact of everyone’s efforts across the U.S.! Events submitted must be in the United States and can include, but are not limited to: a company’s lunch-and-learn for its employees, a patient organization’s community awareness event, a research symposium, a concert, a school program, a media event, Advocacy Event, and more. Rare Disease Day is a grassroots effort and we want to hear how you’re participating. This is a day for every member of the rare disease community — patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.

Your Details

Event Name

The event name. Example: Birthday party


This is a recurring event.

Recurrences span from From to to

Events start from Event starts at to All day

This event repeats every day days week on weeks on month on the months on the year years


of each month

Each event spans day(s)

For a recurring event, a one day event will be created on each recurring date within this date range.


This event does not have a physical location.

Location Name: *
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Event Image

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